Help for a Child with a Rare Case of Skin Disorder: Euan Khristoff Villanis

I would like to ask for your help in behalf of this little boy, Euan Khristoff Villanis, now 8 years old, who is suffering from dystrophic epidermolysis bullosa, a genetic condition where the skin keeps on blistering. There is no cure for this illness and the only treatment is for maintenance wound care, medicines for pain relief and other comfort measures for the boy to live a quality of life.

Both parents are government employees, but with a sick child with lifetime maintenance, both their incomes are not enough to support the boy’s medical needs plus the occasional trips to the hospital with the boy’s frail condition and the open wounds which makes him susceptible to infection. It would seem that every day for them is like a rainy day with not enough money to go on a time like this.

Euan also has a very narrow esophagus so that it is very difficult for him to swallow solid food. A G-tube has been attached to his tummy so that he could get the nourishment he needs, and this G-tube needs to be replaced every six months or so. Euan needs a mickey button G-tube and this is quite expensive.

The following are the medical supplies Euan needs:

FOR GTUBE:

* MIC KEY low profile gastrostomy feeding tube (18fr or 20fr 2cm)- Kimberly Clark at Panamed Ortigas for every 6 months maximum

* Extensions

* Asepto Syringe

* Silicon Foley Catheter (two way-size Fr20)

 

FOR WOUNDS:

* ZYXAL/ ALNIX (ITCHINESS)

* MEFENAMIC ACID

* VIT C (FERN C)

* FERLIN (IRON)

* FISH OIL (softgels)

* VITAMIN E (softgels)

* PETROLEUM JELLY/VASELINE

* CONFORMING BANDAGES

* MICROPORE OR ANY SURGICAL TAPES

* CLING WRAPS

* MEPELEX TRANSFER/MEPELEX LITE/ TELFA

* TUBEFAST/ SURGIFIX (SINGLE GREEN LINE)

* ANY OINTMENT/CREAMS

* GLOVES
* SURGICAL SCISSORS (BIG, MEDIUM, SMALL AND SMALL POINTED)

* BACTROBAN OINTMENT/CREAM or any BURN OINTMENTS

* NIVEA CREAM

The family is in need of our help. We can’t even fathom how quickly their medical bills pile up. Many financial burdens placed on them including the cost of the expensive G-tube that needs to be replaced regularly, and the family is already buried in debt.

If you are able, any donation amount or in kind will help and be so appreciated.

Your generosity is appreciated and will have a direct and positive impact on their lives.

The family has a gofundme account https://www.gofundme.com/fdblm0 where you could send in your donations or you could send supplies directly to the mother, Sharon Villanis.

Contact number is listed below:

Sharon Rose R. Villanis

Astorga Street, Poblacion Ajuy

Iloilo City Philippines 5012

Tel. No. 0949 807 3508

For financial help for GTUBE change every 2 months:

9005948782 RCBC (Sharon Rose R Villanis)

Paypal: sharonrose_villanis@yahoo.com

 

I will extend my gratitude as early as now to those people with kind hearts who will share their blessings to them.

 

Rest assured that I will keep you posted about Euan.

 

Thank you so much and God bless you all.

 

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